Primary Sclerosing Cholangitis (PSC) Archives - British Liver Trust

Shaun’s story: “I like to give back as much as I can.”

Shaun playing bingo

Shaun had primary sclerosing cholangitis and received a liver transplant from a donor liver that was shared …

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Caroline’s story: “I’ve learnt not to worry about the little things.”

Caroline running

Caroline was diagnosed with liver cancer in 2017. Now she’s running the London Marathon 2021. Thank you …

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Ed’s story: “He had a brilliant sense of humour”


Two months after he was diagnosed with liver cancer, Ed (pictured) passed away in July 2020. His …

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Indre’s story: “I hoped my ascites was ‘lockdown weight'”


Indre had a liver transplant in March 2021. She blogs about her liver health story and has …

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David’s story: “I’m privileged to be just a few weeks from my second vaccination.”

man smiling

As the UK’s Covid-19 vaccination programme continues and restrictions slowly start to ease, David, a liver transplant …

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Jenny’s story: “My daughter has her mummy back”

Jenny and family

Jenny was diagnosed with Primary Sclerosing Cholangitis at 29 and went on to have a liver transplant …

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Sheona’s story: “She tried to live life to the full”


Sheona (pictured) died with Primary Sclerosing Cholangitis in 2011 aged just 24. Her mother, June, explains why …

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Elsbeth’s story: “Without these groups, I wouldn’t feel as ‘good'”

Elsbeth and dog

Elsbeth is on the liver transplant waiting list and has been diagnosed with a combination of Primary …

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John’s story: I’m still very active


John was diagnosed with Primary Sclerosing Cholangitis (PSC) in 1994 and had a liver transplant in 2002. …

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Ian’s story: “My one regret is that I still have not found the words to say to his family. Thank you just doesn’t cut it.”


“Although I never realised it at the time, I guess my story starts in the autumn of …

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Lisa and Justin's story

“The British Liver Trust were a real lifeline for Lisa. A gift from you today will help to make sure no one has to deal with liver disease alone.”

– Justin

Justin speaks more about Lisa’s liver transplant in this video.

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What is a CCG or ICS?

CCGs (Clinical Commissioning Groups) were established as part of the Health and Social Care Act in 2012. They are groups of general practices, which come together in each area to commission the best services for their patients and population.

ICS (Integrated Care Systems) are new partnerships between the organisations that meet health and care needs across an area, to coordinate services and to plan in a way that improves population health and reduces inequalities between different groups. ICS will replace Clinical Commissioning Groups (CCGs) by April 2022 and cover a wider geographic area than CCGs.

Devolved nations – health is primarily a devolved matter across the four nations which make up the UK. Among these variations are differing regional structures, Scotland and Wales have Health Boards, England have CCGs (currently being superseded by Integrated Care Systems) and Northern Ireland has Health and Social Care Trusts.

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