Your Stories Archive - British Liver Trust

Georgina’s story: “Thanks to the help and guidance from the British Liver Trust my son copes better, because he has a better knowledge of what is happening and why.”

Georgina’s son Steve developed hepatic encephalopathy (HE), due to chronic liver disease. HE refers to changes in …

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Steve’s story: sharing the emotional side of liver disease

Steve experienced hepatic encephalopathy when his liver started to fail. Here he talks about the impact of his …

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Jessica’s story: “Timely diagnosis of AFLP is difficult as the symptoms are so non-specific, and I didn’t even develop symptoms until the situation was advanced”

Jessica found out she had acute fatty liver of pregnancy (AFLP) shortly before her son was born, …

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Justin’s story: “I am so grateful and in absolute awe of the miraculous work the NHS achieved, and how strong and positive my wife has remained throughout the process.”

Justin’s wife Lisa was diagnosed with with primary biliary cholangitis (PBC) in March 2020. Here he shares …

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Beryl’s story: “My message to anyone who reads this is to listen to your body and if something doesn’t feel right, insist on getting it checked out. “

Beryl was diagnosed with Bile duct cancer (cholangiocarcinoma) fourteen years ago.  She shares her story to raise …

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Andrea’s story: “I started to question whether I should just accept what I’ve been told or seek a second opinion.”

When she was diagnosed with cholangiocarcinoma (bile duct cancer),  Andrea was told she only had weeks to …

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Faye and Nina’s story: “Our hearts go out to anyone living with or caring for someone with HE.”

Faye and Nina had never heard of hepatic encephalopathy (HE) before their mum, Pauline, was diagnosed. Looking …

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Mike’s story: “I was seeing colours differently.”

Mike

After he was made redundant, Mike started feeling unwell. After dismissing his symptoms for a while, he …

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Sally’s story: “It’s not only binge-drinkers and ‘alcoholics’ who get cirrhosis.”

Mike

Sally lost her husband, Mike, to alcohol-related liver disease. She decided to share his story, written as …

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Marian’s story: “I look forward to helping with my new grandson.”

Marian

Marian has primary biliary cholangitis (PBC) and non-alcohol related fatty liver disease (NAFLD). Thank you for sharing …

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Lisa and Justin's story

“The British Liver Trust were a real lifeline for Lisa. A gift from you today will help to make sure no one has to deal with liver disease alone.”

– Justin

Justin speaks more about Lisa’s liver transplant in this video.

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What is a CCG or ICS?

CCGs (Clinical Commissioning Groups) were established as part of the Health and Social Care Act in 2012. They are groups of general practices, which come together in each area to commission the best services for their patients and population.

ICS (Integrated Care Systems) are new partnerships between the organisations that meet health and care needs across an area, to coordinate services and to plan in a way that improves population health and reduces inequalities between different groups. ICS will replace Clinical Commissioning Groups (CCGs) by April 2022 and cover a wider geographic area than CCGs.

Devolved nations – health is primarily a devolved matter across the four nations which make up the UK. Among these variations are differing regional structures, Scotland and Wales have Health Boards, England have CCGs (currently being superseded by Integrated Care Systems) and Northern Ireland has Health and Social Care Trusts.

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