Diane’s story: “I hadn’t realised that primary biliary cholangitis could lead to hepatocellular cancer, so the diagnosis came as a shock”
Diane was taken aback when she received an email while on holiday stating that markers in her …
Rachael’s story: “We’re so grateful for the extra time that Mum’s donor gave her”
This story follows Janet’s diagnosis and transplant journey from 1995 until she passed away in 2024 When …
Jayne’s story: “I promised my dad when he died that I would keep telling people about liver disease”
When Jayne first started feeling unwell her GP told her it was all in her head. Eventually …
Mandy’s story: “I was receiving an organ from someone who had themselves been a transplant patient. What were the risks?”
Mandy lived well with Primary Biliary Cholangitis for 17 years, until 2002 when two tumours were found …
Lynda’s story: “Ursodeoxycholic Acid worked really well for around ten years – although there was cirrhosis there was no deterioration”
Lynda’s ‘world fell apart’ when she was diagnosed with primary biliary cholangitis and when she heard the …
Clare’s story: “My bile ducts had shrivelled up and the only cure was a liver transplant”
Seven years after being diagnosed with Primary Biliary Cholangitis, Clare was a busy working mum and, although …
Rebecca’s story: “Liver disease won’t stop me achieving what I want to achieve”
Rebecca lives with autoimmune hepatitis and primary biliary cholangitis and stays as fit as active as she …
Lucy’s story: “Without my GP making sure my Autoimmune Hepatitis diagnosis was found at the age of 19 I may not have made it this far”
Lucy feels very strongly about early diagnosis of liver disease and being persistent even when she was …
Samantha’s story: “The GP suggested I was a secret drinker and I still feel very hurt about the stigma I experienced. It will never leave me”
Samantha was deeply upset by the stigma she faced from some members of the medical profession. When …
Justin’s story: “I am so grateful and in absolute awe of the miraculous work the NHS achieved, and how strong and positive my wife has remained throughout the process.”
Justin’s wife Lisa was diagnosed with with primary biliary cholangitis (PBC) in March 2020. Here he shares …