Primary Biliary Cholangitis (PBC) Archives - British Liver Trust

Justin’s story: “I am so grateful and in absolute awe of the miraculous work the NHS achieved, and how strong and positive my wife has remained throughout the process.”

Justin’s wife Lisa was diagnosed with with primary biliary cholangitis (PBC) in March 2020. Here he shares …

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Marian’s story: “I look forward to helping with my new grandson.”


Marian has primary biliary cholangitis (PBC) and non-alcohol related fatty liver disease (NAFLD). Thank you for sharing …

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Lisa’s story: “Having a transplant has changed my outlook on life.”

Lisa and Christmas tree

After Lisa was diagnosed with primary biliary cholangitis (PBC), she had a life-saving liver transplant. Thank you …

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Diane’s story: “PBC may return. If it does, I know what to expect.”


Diane had Primary Biliary Cholangitis (PBC), a rare autoimmune liver condition. She’s shared her liver transplant story …

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Elsbeth’s story: “Without these groups, I wouldn’t feel as ‘good'”

Elsbeth and dog

Elsbeth is on the liver transplant waiting list and has been diagnosed with a combination of Primary …

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Pamela’s story

On my return from holiday, I had an appointment with my consultant and he sent me for …

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Gordon Brown’s Story

In January 2011 I went to the doctors with a chest infection whilst chatting to her I …

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Pinny’s story

I went to my GP back in 2000 because I had been suffering with diarrhoea for rather …

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Pat’s Story

Pat Gilbert has been through the trauma of two liver transplants. Within three weeks of receiving her first …

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Lisa and Justin's story

“The British Liver Trust were a real lifeline for Lisa. A gift from you today will help to make sure no one has to deal with liver disease alone.”

– Justin

Justin speaks more about Lisa’s liver transplant in this video.

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What is a CCG or ICS?

CCGs (Clinical Commissioning Groups) were established as part of the Health and Social Care Act in 2012. They are groups of general practices, which come together in each area to commission the best services for their patients and population.

ICS (Integrated Care Systems) are new partnerships between the organisations that meet health and care needs across an area, to coordinate services and to plan in a way that improves population health and reduces inequalities between different groups. ICS will replace Clinical Commissioning Groups (CCGs) by April 2022 and cover a wider geographic area than CCGs.

Devolved nations – health is primarily a devolved matter across the four nations which make up the UK. Among these variations are differing regional structures, Scotland and Wales have Health Boards, England have CCGs (currently being superseded by Integrated Care Systems) and Northern Ireland has Health and Social Care Trusts.

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