Autoimmune Hepatitis Archives - British Liver Trust

Kim’s story: “There’s light at the end of the tunnel.”


When she was diagnosed with autoimmune hepatitis (AIH), Kim assumed the worst. Now she’s enjoying life again, …

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Sally’s story: “There’s a lack of awareness of liver disease compared to cancer.”


Sally has autoimmune hepatitis (AIH) and is also a Trustee at the British Liver Trust. Here she …

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Jane’s story: “I’ve got my life back again.”


Jane, from Cardiff, was diagnosed with autoimmune hepatitis (AIH) and cirrhosis, and went on to have a …

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Sue’s story: “My doctor told me that I definitely didn’t have AIH”


Sue’s autoimmune hepatitis (AIH) diagnosis took six months, and she was mistakenly told she didn’t have the …

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Indre’s story: “I hoped my ascites was ‘lockdown weight'”


Indre had a liver transplant in March 2021. She blogs about her liver health story and has …

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Declan’s story: “I’d never heard of AIH before.”


The British Liver Trust’s virtual support groups have been useful to me. In September 2020, I was …

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Rosie’s story: “I think you can feel more isolated and lonely in a city than we do here on our island.”


Rosie has autoimmune hepatitis and lives on the Isle of Lewis in Scotland. She describes her experience …

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Clare’s story: “The doctor thought it was all in my mind”


Clare had a very long journey before she was finally diagnosed with autoimmune hepatitis. She is kindly …

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Heidi’s story: “I feel very lucky to be alive”


Heidi is supporting the Sound the Alarm campaign for earlier diagnosis of liver disease. She shares her …

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Danielle’s story: “If I’d had better care right from the start, the liver damage might not have progressed so far”


Danielle, from Glasgow, has auto-immune hepatitis (AIH). She’s supporting our campaign to sound the alarm on liver …

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Lisa and Justin's story

“The British Liver Trust were a real lifeline for Lisa. A gift from you today will help to make sure no one has to deal with liver disease alone.”

– Justin

Justin speaks more about Lisa’s liver transplant in this video.

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What is a CCG or ICS?

CCGs (Clinical Commissioning Groups) were established as part of the Health and Social Care Act in 2012. They are groups of general practices, which come together in each area to commission the best services for their patients and population.

ICS (Integrated Care Systems) are new partnerships between the organisations that meet health and care needs across an area, to coordinate services and to plan in a way that improves population health and reduces inequalities between different groups. ICS will replace Clinical Commissioning Groups (CCGs) by April 2022 and cover a wider geographic area than CCGs.

Devolved nations – health is primarily a devolved matter across the four nations which make up the UK. Among these variations are differing regional structures, Scotland and Wales have Health Boards, England have CCGs (currently being superseded by Integrated Care Systems) and Northern Ireland has Health and Social Care Trusts.

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