The British Liver Trust is a charity registered in England, Wales and Scotland and exists to raise awareness of liver disease, support anyone affected by liver disease and campaign for better treatment and services for all those affected. The British Liver Trust relies on voluntary donations and fundraising activities to fund its work and therefore collects data to make fundraising appeals, raise awareness and support all of its work.
The British Liver Trust (“the Trust”/”we”) respect your privacy and are fully committed to keeping safe any personal information that you choose to give us.
We are operating an ‘opt in’ system of collecting personal information where you can specify exactly how you would like us to contact you, or not, in the future.
This policy explains how we collect, store and use this personal information, how we will keep it safe and how long we will keep it.
In accordance with European General Data Protection Regulation (GDPR) the lawful basis by which we collect and store personal data is;
- Consent – you have given us your information and permission to record it
- Contract – you have purchased/ordered materials and/or information and we have collected your data in order to supply it
- Legitimate interests – processing of your data is necessary for your legitimate interests in liver disease
In all of the above cases you have the right to ask to see what information has been recorded about you and to request your information be changed or deleted. We will comply with your request.
How we collect information about you
We may collect personal information from you in a number of different ways:
- When you give it to us directly:
This is when you enquire about our activities, sign up to join our mailing list, complete feedback forms or surveys, make a donation to us, ask about liver conditions, apply for a job or volunteering opportunity. This can be when you contact us by phone, through our website, by post or in person
2. When you give it to us indirectly:
Your information may be shared with us by independent event organisers such as the London Marathon, Charity Challenge and others, or by fundraising sites such as Everyday Hero, Just Giving and Virgin Money Giving.
We may receive information from companies such as PayPal, Payroll Giving and more, or from social media sites if you have given them permission to pass on your information.
These independent parties should only pass on your information if you have given them your express consent to do so. They will have their own privacy policies so you may wish to check this when you give your information to understand how they process your information.
What information we collect and how we use it
The type and quantity of information we collect depends on why you are providing it. The information collected may include details such as your name, date of birth, email address, postal address, telephone numbers and banking/credit/debit card details (if you are making a purchase or donation), together with any additional information or feedback you may provide to us in any correspondence between us.
We also gather information on how our websites are used, such as which pages are visited most, which publications downloaded most often and which services are of most interest. In this respect we use aggregated information which is anonymous and does not identify individual visitors to our websites.
We may also track which pages users visit when they click on links in Trust emails. We use this website information to personalise and improve the way our websites are presented and the information provided to ensure we provide the best service for users.
If you have chosen to tell us about your experiences with liver disease to help further our work, share your story on our website, or take on a role as a Media Volunteer then this may include sharing sensitive information related to your health and family life, but only information that you have given us permission to share, in addition to biographical and contact information.
We run a helpline and support service to provide support to individuals affected by liver disease, and may collect personal data in order to provide those services. Our helpline and support staff may collect sensitive personal data about your health when you speak, email or send an instant message to them. They will use this information to answer your questions and give guidance. We may also use it for training, quality monitoring or evaluating the services we provide.
We will use your data to provide you with the services, materials or information you have requested, administer your donation and support your fundraising (including collecting gift aid), ensure we know how you wish to be contacted, understand your needs, keep a record of your relationship with us, and understand how we can improve our services products or information.
We use some of the information provided, including gender, ethnicity, region of the UK or type of liver condition people have experience with, to further our work for those with liver disease and to raise awareness. This information may be made public by us at events, in materials promoting our campaigning and fundraising work, or in documents such as our annual report but will only be used if we have the explicit and informed consent of the individuals involved.
We do not sell or share personal details to third parties for the purposes of marketing. We will not pass on your details to anyone else without your express permission except in exceptional circumstances where someone may be at risk of serious harm or if required to do so by Law.
All of our forms have clear preferences for contacting you. If you don’t want to hear from us then please let us know when you provide your data or contact us on 01425 481320 or email firstname.lastname@example.org
We will periodically send promotional material about our activities, services, ways you can support the Trust or other information which we think you may find interesting, using the contact details which you have provided. All of our marketing/promotional information will have clear information on how to opt out. If you no longer wish to hear from us then just let us know by following the options on the material you have received or email us at email@example.com
How long we keep your information
We will not keep your information indefinitely. We will only keep your information for the minimum amount of time needed depending on why you have given it to us and to comply with any legal requirements:
How we keep your information safe
We take the security of your personal information extremely seriously and we've implemented appropriate physical, technical and organisational measures to protect the personal information we have under our control, both on and off-line, from improper access, use, alteration, destruction and loss.
There are a number of ways that we protect your personal information, for example:
- Online - if you provide personal information to us through one of our website forms then that information is encrypted for protection on transmission to us. Encryption is the process through which sensitive information is scrambled before it is transmitted so that it remains private even if it is intercepted.
- Offline/paper - your personal information is kept securely in our database and offices.
- Our website may contain links to other sites. While we try to link only to sites that share our high standards and respect for privacy, we are not responsible for the content or the privacy practices employed by other sites. Please be aware that Websites that have links from our site may collect personally identifiable information about you. This privacy statement does not cover the information practices of those websites.
If you use standard email to communicate with the Trust please be aware this will not be secure and the Trust cannot guarantee that it remains confidential in transit.
Cookies are small files of information which save and retrieve information about your visit to our site – for example, how you entered our site, how you navigated through the site, and what information was of interest to you. The cookies we use identify you merely as a number.
Cookies help us analyse web traffic to identify which pages are being used. This helps us improve our website in order to tailor it to customer needs. We only use this information for statistical analysis purposes.
Overall, cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us.
Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer.
You have the right to know what personal information we hold about you and to ask us to make changes to that information or ask for it to be deleted (the right to be forgotten).
You have the right to ask for a copy of the information we hold about you, although we may charge £10 to cover the costs involved. If there are any discrepancies in the information we provide, please let us know and we will correct them.
If you want to access your information, please send your request and proof of your identity by post to Data Controller, British Liver Trust, 6 Dean Park Crescent, Bournemouth BH1 1HL. We do not accept these requests by email so we can ensure that we only provide personal data to the right person.
If you have any questions please send these to firstname.lastname@example.org
If you would like further information or are not happy and would like to make a complaint then please see the Information Commissioner’s guidance here (link is external).