Haemochromatosis Archives - British Liver Trust

Wendy’s story: “It helped knowing someone else with my condition.”

Wendy has haemochromatosis and felt ill for a long time before she was diagnosed. Thank you for …

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John’s story: “I wondered what I’d done to get haemochromatosis.”

John

John was diagnosed with haemochromatosis and cirrhosis. He says: “From life being very enjoyable to being told …

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Mike’s story

I was diagnosed with Haemochromatosis in 2005 and subsequently cirrhosis in 2009 and liver cancer in 2011. …

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Lisa and Justin's story

“The British Liver Trust were a real lifeline for Lisa. A gift from you today will help to make sure no one has to deal with liver disease alone.”

– Justin

Justin speaks more about Lisa’s liver transplant in this video.

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What is a CCG or ICS?

CCGs (Clinical Commissioning Groups) were established as part of the Health and Social Care Act in 2012. They are groups of general practices, which come together in each area to commission the best services for their patients and population.

ICS (Integrated Care Systems) are new partnerships between the organisations that meet health and care needs across an area, to coordinate services and to plan in a way that improves population health and reduces inequalities between different groups. ICS will replace Clinical Commissioning Groups (CCGs) by April 2022 and cover a wider geographic area than CCGs.

Devolved nations – health is primarily a devolved matter across the four nations which make up the UK. Among these variations are differing regional structures, Scotland and Wales have Health Boards, England have CCGs (currently being superseded by Integrated Care Systems) and Northern Ireland has Health and Social Care Trusts.

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