Online Archives - British Liver Trust

AMMF (national)

Charity and online support forum for anyone affected by Cholangiocarcinoma (bile duct cancer). They also provide information and support throughout the UK with patients and their carers.

http://ammf.org.uk/forum/

Alpha-1 Awareness (national)

Online information and support for those with Alpha-1 Antitrypsin deficiency.
www.alpha1.uk
info@alpha1.uk

Alpha-1 UK Support Group (national)

Online forum, information and support for anyone affected by Alpha-1 Antitrypsin deficiency.
www.alpha1.org.uk
info@alpha1.org.uk

AIH Support (national)

Online forum for anyone affected by AIH
www.autoimmunehepatitis.org.uk
Ann Brownlee
admin@autoimmunehepatitis.org.uk

Club Soda (national)

An organisation that provides a blog, events and courses to support people to change their drinking habits.
https://www.joinclubsoda.co.uk
laura@joinclubsoda.co.uk

Haemochromatosis UK

www.haemochromatosis.org.uk
office@huk.org.uk
helpline@huk.org.uk
Advice line: 03030 401102

Hepatitis B Positive

Website and information line for people with Hepatitis B
www.hepbpositive.org.uk
0800 206 1899

Hep C Trust

The Hepatitis C Trust no longer run support groups but have a UK national helpline, staffed solely by people who have had experience of living with hepatitis C.   They are open from Monday to Friday from 10.30am to 4.30pm, on 020 7089 6221 or by email to helpline@hepctrust.org.uk

In addition to this, they also run a Freephone national helpline specifically for prisoners to access information and support on 0800 999 2052

Office: 020 7089 6220
Email: admin@hepctrust.org.uk
Website:  www.hepctrust.org.uk/support

ICP Support (national)

Provides support and information on ICP via moderated social media groups and a telephone support line.
www.icpsupport.org
supportline@icpsupport.org

Liver Transplant Online Support Group UK

Online group offering peer to peer support for anyone pre or post liver transplant.
www.facebook.com/groups/livertransplantonlinesupportgroupuk/

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What is a CCG or ICS?

CCGs (Clinical Commissioning Groups) were established as part of the Health and Social Care Act in 2012. They are groups of general practices, which come together in each area to commission the best services for their patients and population.

ICS (Integrated Care Systems) are new partnerships between the organisations that meet health and care needs across an area, to coordinate services and to plan in a way that improves population health and reduces inequalities between different groups. ICS will replace Clinical Commissioning Groups (CCGs) by April 2022 and cover a wider geographic area than CCGs.

Devolved nations – health is primarily a devolved matter across the four nations which make up the UK. Among these variations are differing regional structures, Scotland and Wales have Health Boards, England have CCGs (currently being superseded by Integrated Care Systems) and Northern Ireland has Health and Social Care Trusts.

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