Groups by area
National groups - cover all areas
AIH Support
Online forum for anyone affected by AIH
www.aihsupport.org.uk
Email: admin@aihsupport.org.uk
Facebook: https://www.facebook.com/groups/AIHorgUK/
Alpha 1 Awareness
Information and support for those with Alpha-1 Antitrypsin deficiency. Although the Alpha-1 Awareness charity has dissolved, an online Facebook group remains so that those newly diagnosed can still get support from fellow Alphas from around the World.
Facebook: https://www.facebook.com/groups/alpha1awarenessuk
Alpha 1 UK Support Group (Alpha-1 Antitrypsin Deficiency)
Online forum, information and support for anyone affected by Alpha-1 Antitrypsin deficiency.
www.alpha1.org.uk
Email: info@alpha1.org.uk
Facebook: https://www.facebook.com/groups/alpha1uk/
AMMF – The Cholangiocarcinoma Charity
Charity and online support forum for anyone affected by Cholangiocarcinoma (bile duct cancer). Provide information for patient and families, and support through an online forum.
Email: info@ammf.org.uk
Twitter: @CharityAMMF
Club Soda
An organisation that provides a blog, events and courses to support people to change their drinking habits.
www.joinclubsoda.co.uk
Facebook: https://www.facebook.com/groups/joinclubsoda/
Haemochromatosis UK
Haemochromatosis UK work to support anyone affected by the condition, across three key areas; support, education & awareness, and medical research.
Advice line: 03030 401102
Advice line email: helpline@huk.org.uk
Hep C Trust
The Hepatitis C Trust is the national UK charity for hepatitis C offering a range of friendly and professional peer-led support services, including advocacy, support groups and a helpline. Whether it is questions you may have, problems you are encountering as a result of your diagnosis, or support you need around any issues connected with hepatitis C, we are here to help you.
Office: 020 7089 6220
Email: admin@hepctrust.org.uk
Their UK national helpline, staffed solely by people who have had experience of living with Hepatitis C, is open from Monday to Friday, 10.30am to 4.30pm:
Advice line: 020 7089 6221
Advice line email: helpline@hepctrust.org.uk
In addition to this, they also run a Freephone national helpline specifically for prisoners to access information and support on 0800 999 2052
Hepatitis B Positive Trust
Website and information line for people with Hepatitis B
www.hepbpositive.org.uk
Helpline: 07958 558510
Email: coordinator@hepbpositive.org.uk
ICP Support (Intrahepatic cholestasis of pregnancy (ICP))
Provides support and information on ICP via moderated social media groups and a telephone support line.
www.icpsupport.org
Helpline: Open 10am-2pm, Mon–Wed on 07939 871929 and Thurs–Fri on 07709 634497
Email: helpline@icpsupport.org
Facebook: https://www.facebook.com/icpsupport/
Liver Transplant Online Support UK
Online group offering peer to peer support for anyone pre or post liver transplant.
Facebook: https://www.facebook.com/groups/livertransplantonlinesupportgroupuk/
Neuroendocrine Cancer UK
An organisation to support patients and their loved ones with the physical and psychological burden of Neuroendocrine Cancers, with services including counselling and local support groups.
www.neuroendocrinecancer.org.uk/
Helpline: Open 10am-4pm Tues-Thurs on 0800 434 6476
Email: hello@nc-uk.org
PBC Foundation (Primary biliary cholangitis (PBC))
The PBC Foundation helps those affected by PBC: patients, carers, families and health professionals. Offering a range of services including a helpline.
www.pbcfoundation.org.uk
Helpline: 0131 556 6811
Email: info@pbcfoundation.org.uk
PSC Support (Primary sclerosing cholangitis (PSC))
Information, research and support for anyone affected by PSC
www.pscsupport.org.uk
Office: 01235 253545
Email: hello@pscsupport.org.uk
Turning Point
A leading social enterprise, providing health and social care services in over 300 locations across England, working with people who need support with their drug and alcohol use, mental health, offending behaviour, unemployment issues and people with a learning disability. We aim to inspire and empower them to discover new possibilities in their lives.
We Are With You
Get free, confidential support with alcohol, drugs or mental health online or from one of our local services in England or Scotland.
Wilson’s Disease Support
The Wilson's Disease Support Group - UK is an all-volunteer organisation which strives to promote the well-being of patients with Wilson's Disease and their families and friends through patient support, education and outreach.
www.wilsonsdisease.org.uk
Email: val@wilsonsdisease.org.uk
Wales
Gwent Liver Support Group – Gwent Liver Unit
Providing ongoing support for patients, relatives and carers of those living with liver disease. Meet the team, learn about available services, and chat to others affected by liver disease. Email: ABB.LiverNurseAdviceLine@wales.nhs.uk for upcoming meeting dates and invite.
East Anglia
Addenbrookes Liver Transplant Association (ALTA)
Offers support and guidance on liver transplants.
Email: info@alta.org.uk
Basildon & Thurrock Liver Support
Please call 01268 593078 for further information
Essex Liver Support
Informal support by phone and email.
Debbie Eady
essex.liversupport@ntlworld.com
Phone: 01799 501869
Email: deb.eady@ntlworld.com
Norfolk & Norwich Liver Group
Quarterly meetings – 1st Monday in June, September, December and March
Mac's Bar, St John's Roman Catholic Cathedral, Unthank Road, Norwich, NR2 2PA
Contact Marjorie Dingle
Phone: 01362 695624
Email: marjorie.dingle@hotmail.com
London
Listen
Listen is a patient led group at King’s College Hospital, providing support and information to pre and post liver transplant patients, their family and friends. We work closely with professionals from the Liver Unit at King’s, running monthly virtual support group meetings via Zoom and one-to-one conversations, face to face or by phone, email, text or video call over Zoom.
Website: www.listenatkings.org
Email: info@listenatkings.org or paul.mckie@nhs.net
Midlands
Queen Elizabeth Hospital Birmingham Liver Unit Support Group
The group aims to provide support, education and encouragement to patients in addition to improving medical care. Regular meetings are held face to face and virtually.
Email: QEHBLiverUnitSupportGroup@uhb.nhs.uk
Phone: 0121 371 2627
Northern Ireland
Northern Ireland Transplant Association
Information and support for Transplantees living in Northern Ireland.
www.nitransplant.org
07926 060491
Royal Victoria Hospital Liver Support
www.rvhliversupportgroup.org
rvhlsg@gmail.com
07737 718493
North East England
LIVErNORTH
National Liver patient support group and charity for all liver conditions based at the Freeman Hospital, Newcastle upon Tyne.
Joan Bedlington MBE and John Bedlington MBE
www.livernorth.org.uk
Phone: 0191 3702961
Email: info@livernorth.org.uk
North West England
Blackpool, Fylde & Wyre Haemochromatosis Support Group
Here to Support people affected by genetic haemochromatosis and their families, to “Raise Awareness among the medical profession, patients and general public, to improve the rates and ages of diagnosis.
www.haemochromatosisblackpool.org.uk
Phone: 01253 311060
Email: info@haemochromatosisblackpool.org.uk
R-Space Recovery Group Liverpool
R-Space aims to help people find recovery from addiction, mental health issues and social problems in Merseyside and the surrounding areas by providing regular meetings, activities and one to one support.
Facebook: https://www.facebook.com/R-Space
SOS Cancer Support
Meets on the 3rd Thursday of each month from 2-4pm at Cancer Care, Slynedales, Slyne Road, Lancaster LA2 6ST. Supports patients and carers with personal experience of stomach, oesophageal, liver or pancreatic cancers in the Morecambe Bay area.
www.sos-cancersupport.uk/
Email: ian@sos-cancersupport.uk
South East England
Berkshire HealthMakers
Berkshire HealthMakers aim to help people better manage their long term health condition and improve quality of life through their six week self-management courses which run throughout the year. Courses are available to anyone living with a long term health condition in East Berkshire (Ascot, Bracknell, Maidenhead, Sandhurst, Slough and Windsor) area.
Peer support & management.Health & wellbeing,mental health difficulties
www.berkshirehealthcare.nhs.uk
https://www.facebook.com/HealthmakersUK/
West Sussex Support
Support for patients, family and friends affected by any liver condition. The group meets regularly in Chichester, email Jim Cullen for details:
cullen54march@gmail.com
South West England
Bristol Liver Unit Support Group
A support group for people who have liver disease and their loved ones, who are involved with the Bristol Liver Unit at University Hospitals Bristol and Weston. We are holding virtual meetings over zoom approx. every 3 months, which includes a speaker and peer-led discussion.
Email: blusupport@uhbw.nhs.uk
Cornwall Liver Support – Liverish Allsorts
Our members have liver issues, or care for someone with them, and we share information and support through our Facebook page.
Carol Kavanagh
Email: carolkav55@gmail.com
Facebook: https://www.facebook.com/groups/559485634168975/
Exeter Liver Support
Our ‘closed’ Facebook group is for people with liver problems from any cause. It lists our meeting details, both in person and talking on Microsoft Teams, relevant information about liver disease and discussions between members. Our meetings include our fantastic Liver nurses and sometimes we have guest speakers, or a consultant may join us. All are welcome to contribute: patients, family, friends and medical staff. The group is based in Exeter, but anyone is welcome to join us.
Facebook: http://www.facebook.com/groups/exeter.liversupport/
Plymouth Friends of Liver Lifeline
Email and telephone support. Based in Plymouth but happy to help anyone who needs support.
Phone: 01752 934942
Email: Sheilaconnolly111@gmail.com
Southwest Liver Buddies
An active liver patient support group working alongside the liver team at Derriford Hospital, Plymouth, to help further develop the services offered by the Southwest Liver Unit (SWLU) across the region. The group exists to provide assistance and friendly encouragement alongside the medical care of NHS professionals. Members of the group are all volunteers and include patients diagnosed with liver conditions, those undergoing treatment, those waiting for a liver transplant and transplant recipients. They also welcome patients’ friends and family members who assist in their care.
Yorkshire and the Humber
St James’s (Leeds) Liver Transplant Support
Support group for people and their families who have received or are awaiting a liver transplant at St James's hospital, Leeds UK. We also try and support people and their families who are going through the assessment process for a liver transplant at St James Hospital, Leeds UK. Please use the Facebook page link below for current news and posts relevant to the group whilst the website is under construction.
www.stjamesltsg.org (Website is currently being updated 01/09/22)