Privacy Policy

The British Liver Trust/Children’s Liver Disease Foundation is a charity registered in England, Wales and Scotland and exists to raise awareness of liver disease, support anyone affected by liver disease and campaign for better treatment and services for all those affected.

We rely on voluntary donations and fundraising activities to fund its work and therefore collects data to make fundraising appeals, raise awareness and support all of its work.

In accordance with European General Data Protection Regulation (GDPR) the lawful basis by which we collect and store personal data is;

1. Consent – you have given us your information and permission to record it
2. Contract – you have purchased/ordered materials and/or information and we have collected your data in order to supply it
3. Legitimate interests – processing of your data is necessary for your legitimate interests in liver disease

The following table provides examples of the types of data we collect and the legal basis, under current data protection legislation, on which this data is processed.

We collect your data both directly and indirectly

When you give it to us directly

You may give us your information in order to enquire about our work, complete our screener, sign up for one of our events, volunteer for us, share your story, make a donation or calling the helpline  This may be by phone, by email or by filling in a form on our website.

When you give it to us indirectly

Third parties:  Your information may be shared with us by independent event organisers such as the London Marathon, Charity Challenge and others, or by fundraising sites such as Everyday Hero, Just Giving and Virgin Money Giving.

We may receive information from companies such as PayPal, Payroll Giving and more, or from social media sites if you have given them permission to pass on your information.

These independent parties should only pass on your information if you have given them your express consent to do so. They will have their own privacy policies so you may wish to check this when you give your information to understand how they process your information.

You should consult their privacy policies when you provide your information, to understand fully how they process it.

Information Available Publicly:  We may supplement information on our supporters with information from publicly available sources such as Companies House, charity websites and annual reviews, corporate websites, public social media accounts and the electoral register in order to create a fuller understanding of someone’s interests and support of the charity. This enables us to tailor and target our fundraising events and communications to those most likely to be interested in them, making efficient use of our resources.

After taking your communication preferences into account, we may use information we hold to research your employment and any philanthropic activity, and the potential to make gifts to the British Liver Trust. We only use reputable sources, where someone would expect their information may be read by the public.  We avoid any data that we believe has not been lawfully or ethically obtained, and we do not use information sources which have not been broadcast or made public.

Website analytics: We also gather information on how our websites are used, such as which pages are visited most, which publications downloaded most often and which services are of most interest. In this respect, we use aggregated information which is anonymous and does not identify individual visitors to our websites.

We may also track which pages users visit when they click on links in Trust emails. We use this website information to personalise and improve the way our websites are presented and the information provided to ensure we provide the best service for users.

We will only use your data in a manner that is appropriate considering the basis on which that data was collected, as set out in the 'lawful basis' section above.

For example, we may use your personal information to:

• reply to enquiries you send to us;
• handle donations or other transactions that you initiate;
• where you have specifically agreed to this, send you marketing communications by email relating to our work which we think may be of interest to you.

All of our forms have clear preferences for contacting you. If you don’t want to hear from us then please let us know when you provide your data or contact us on 01425 481320 or email info@britishlivertrust.org.uk

Updates about our work

If you want to receive updates from us, we will collect:

• Your name
• E-mail address
• Phone number

We might also ask for your:

• Address (if you want to receive postal updates)
• More details about why you are interested in the British Liver Trust e.g. if you’re a patient or healthcare professional

We will use your data to:

• Send promotional material about our activities, services, ways you can support the Trust or other information which we think you may find interesting, using the contact details which you have provided.
• Keep a record of your relationship with us

All of our marketing/promotional information will have clear information on how to opt-out. If you no longer wish to hear from us then just let us know by following the options on the material you have received or email us at info@britishlivertrust.org.uk

The lawful basis for processing this data is ‘Legitimate Interests’:

Fundraise or donations

 If you raise money for us or donate to us, we will usually collect:

• Your name and contact details
• Date and detail of your fundraising/donation(s)
• Payment details – we do not hold these details, they are processed on our behalf by our trusted payment processors

We might also ask for:

• The reason you decided to support us (optional)
• Details specifically required to participate in a fundraising challenge e.g. your name, date of birth, location, fundraising page
• Your clothing size (if you would like to order branded clothing)

We will use your data to:

• Provide you with the support and merchandise you need to help you fundraise
• Administer your donation, including processing gift aid
• Keep a record of your relationship with us
• Ensure we know how you prefer to be contacted
• Understand how we can improve our services, products, or information.

The lawful basis for processing this data is ‘Legitimate Interests’:

• The processing is necessary for us to raise funds to be used to further all our charitable objectives

Helpline

We run a helpline and support service to provide support to individuals affected by liver disease, and may collect personal data in order to provide those services. Our helpline and support staff may collect:

• Name and contact details
• Sensitive personal data about your health when you speak, email, leave a message or send an instant message to them
• Gender, ethnicity, region of the UK or type of liver condition people have experience with
• Call recordings

We will use your data to:

• Provide you with the services, materials or information you have requested
• Ensure we know how you wish to be contacted
• Understand your needs
• Keep a record of your relationship with us
• Understand how we can improve our services products or information
• Train our helpline team, monitor quality and evaluate the services we provide

We may also use your data to:

• To further our work for those with liver disease and to raise awareness.

This information may be made public by us at events, in materials promoting our campaigning and fundraising work, or in documents such as our annual report but will only be used if we have the explicit and informed consent of the individuals involved.

Sharing your story

If you have chosen to tell us about your experiences with liver disease to help further our work, share your story on our website, or take on a role as a Media Volunteer then this may include sharing sensitive information related to your health and family life,  but only information that you have given us permission to share, in addition to biographical and contact information.

We will only ever share this information publicly if we have your explicit consent to do so. We will usually share it via our website in the patient stories section or in a specific text approved by you. Sometimes we may use your information in materials promoting our campaigning and fundraising work, or in documents such as our annual report, but only with your consent.

From time to time we may be asked for details of your story, by third parties (such as newspapers, radio stations or TV producers). We will never pass your details to them without your explicit consent each and every time we are asked.

The lawful basis for processing this data is ‘Legitimate Interests’:

• The processing is necessary for us to raise awareness of liver disease and the issues that patients face
• The processing is necessary to our charitable objective to provide patient information and support

Website analytic data

We also gather information on how our websites are used, such as which pages are visited most, which publications downloaded most often and which services are of most interest. In this respect we use aggregated information which is anonymous and does not identify individual visitors to our websites.

We may also track which pages users visit when they click on links in Trust emails. We use this website information to personalise and improve the way our websites are presented and the information provided to ensure we provide the best service for users.

Screener data

Our Love Your Liver screener, which can be completed on our website, allows you to anonymously input information about your health to assess your risk of liver disease.

The information you provide on this form will only be used to assess your liver health and for statistical purposes. Data will not be shared with any third party.

At the end of the screener, you have the option to sign-up for e-mail updates.  Please see the 'Updates about our work' section above for more information.

Third parties

We do not sell or share personal details to third parties for the purposes of marketing.

We will not pass on your details to anyone else without your express permission except in exceptional circumstances where someone may be at risk of serious harm or if required to do so by Law.

To target our digital and social media marketing

Pixel-based retargeting

When you visit our website we host a pixel which is placed on your browser as a cookie (see our Cookie Policy for more information). This is really useful as it means if you leave the site the cookie will notify platforms like Facebook/Twitter that you have left enabling us to present ads about our work and how you might be able to support us.

You can turn this functionality off. (See our Cookie Policy)

List-based targeting

If you have given us permission to receive e-mail communications from us we have the capability to upload in an encrypted way to platforms like Twitter/Facebook. This enables a cost-effective way of getting our message out to people like you quickly.

If you don’t want to receive this type of targeted advertising on social media you can opt out at any time by e-mailing info@britishlivertrust.org.uk or by calling 01425 481320. This will not stop our advertisements being shown to you through other methods.

• Ensure our messages are relevant and timely
• Contact you about events or appeals that may be of interest, such as those near where you live
• Understand how you might be able to support our work in the future
• Use our resources efficiently and responsibly
• Avoid sending marketing to individuals who may be vulnerable

• Develop predictive models
• Improve our support services
• Inform our campaigns

We take into account various criteria when determining the appropriate retention periods for personal data and we will only keep information for the minimum amount of time needed.

Our Record of Processing Activities (ROPA) sets out how long we will keep your information for. In some cases the retention periods are governed by law, in other cases by best practice recommendations.

Personal information that we no longer need is securely disposed of and/or anonymised.  If you would like more details about how long we keep your personal information, please contact our Data Protection Lead.

We take the security of your personal information extremely seriously and we've implemented appropriate physical, technical and organisational measures to protect the personal information we have under our control, both on and off-line, from improper access, use, alteration, destruction and loss.

There are a number of ways that we protect your personal information, for example:

• Online - if you provide personal information to us through one of our website forms then that information is encrypted for protection on transmission to us. Encryption is the process through which sensitive information is scrambled before it is transmitted so that it remains private even if it is intercepted.
• Offline/paper - your personal information is kept securely in our database and offices.
• Our website may contain links to other sites. While we try to link only to sites that share our high standards and respect for privacy, we are not responsible for the content or the privacy practices employed by other sites. Please be aware that websites that have links from our site may collect personally identifiable information about you. This privacy statement does not cover the information practices of those websites.
• Any debit or credit card details entered through our website are entered directly and securely to our payment processing partner, Blackbaud Merchant Services, according to the Payment Card Industry Security Standards. We also have a link to donate via PayPal who have their own privacy policy and practices which are outside the remit of this privacy policy.

If you use standard email to communicate with the Trust please be aware this will not be secure and the Trust cannot guarantee that it remains confidential in transit.

A cookie is a snippet of text that is sent from a website’s servers and stored on a web browser. Like many websites, we use cookies and similar technologies to collect additional website usage data and to operate our services

We use cookies to:

• To make our site work properly and allow users to securely donate, access forms and generally browse our website as intended.
• Measure the use of the website to ensure we’re getting the right messages to the right people.
• Collect information about your use of our website which is anonymised and used to help improve the website for everyone who accesses it.
• Cookies are also placed by third parties (listed below) such as YouTube, Twitter and Facebook. We use these to enhance your experience across all platforms including our site.

We do not use cookies to:

• Store any personal identifiable information
• Pass any personal identifiable information to third parties

View our Cookie Policy for more information.

Under the Data Protection Act 2018 you have the following rights:

• Information Right – the right to receive the information contained in this policy and our data collection forms about the way we process your personal data.
• Personal Data Access Right – the right to know that we are processing your personal data and, in most circumstances, to have a copy of the personal data of yours that we hold. You can also ask for certain other details such as what purpose we process your data for and how long we hold it.
• Personal Data Correction Right – You have the right to request that we correct inaccurate data or complete incomplete data that we hold on you.
• Personal Data Erasure Right – Known as the right to be forgotten. In certain circumstances you may request that we erase your personal data held by us.
• Personal Data Restriction Right – You have the right to restrict the way we process your personal data in certain circumstances, for example if: you contest the accuracy of the data, if our processing is unlawful, to pursue legal claims, where we are relying on legitimate interests to process data.
• Data Processing Objection Right – You have the right to object to us processing your data for (i) direct marketing purposes (ii) scientific or historical research or statistical purposes and (iii) purposes of profiling related to direct marketing or based on our legitimate interests or on the performance of a task in the public interest.
• Data Portability Right – You have the right to receive a copy of certain personal data or to have it transferred to another organisation in some circumstances.

Right to Withdraw Consent at any time
Where we use your personal information based on your prior consent, such as information about your health, or where you have given us permission to send you marketing communications by email, mobile messaging and by direct message on social media, you can withdraw your consent at any time by contacting us.