Frank’s story: “Throughout this journey, I’ve been incredibly fortunate to receive such informative and supportive care.”

Early detection of liver disease is essential for effective treatment and better health outcomes for people with, and at risk of, liver cancer. Thanks to prompt action by his GP following routine tests, Frank was diagnosed with MASLD (Metabolic-Associated Steatotic Liver Disease). Further investigations led to the discovery of liver cancer, underscoring how early diagnosis of an underlying liver condition can lead to timely intervention or even prevention of liver cancer. Here, in his own words, Frank shares his experience.

After retiring at 66 in June 2023 and spending a busy summer looking after my grandchildren, I developed a chest infection that took months to fully recover from. In early 2024, I decided to visit my GP for a ‘health MOT’ to check everything was ok. Several tests were carried out, including blood pressure, cholesterol, and blood tests, which revealed elevated liver markers. I was then referred for a FibroScan, a non-invasive liver scan, which was conveniently conducted in a white NHS mobile unit in my GP surgery car park, as part of a service that travels throughout the local community.

My FibroScan score came back at 11.9 KPA, significantly higher than the normal range, indicating possible fibrotic or cirrhotic damage. I was extremely alarmed. As someone who had always been active, with 24 years of military service, this news was a huge shock.

As I waited for further investigations, I immediately started making lifestyle changes, including walking and swimming more regularly. The doctor advised me on ways to help maintain a healthy liver—cutting down on alcohol, eating healthier, and staying active. I began researching liver health, including accessing information on the British Liver Trust website, and gathering resources about my condition.

In April, I underwent further tests, including an ultrasound on the 3rd, followed by both a CT thorax (chest)and MRI scans on the 12th. In early May, I was informed about the results of the CT scans, which revealed a 1.4 cm lesion on my liver. There was concern it could be malignant, so I was scheduled for a PET scan to determine if the lesion would “light up,” indicating potential cancer.  Although the nature of the lesion was still uncertain, it appeared to be confined to my liver. As a precaution, I was scheduled for microwave ablation, a procedure to remove the lesion.

On the 2nd of July, I had the operation. It was meant to be a day procedure, but after coming out of general anaesthesia, things took a turn for the worse. The pain in my chest and side, from having the surgery through my rib cage, became unbearable. I was rushed for an X-ray and an ECG. I distinctly remember the senior liver nurse telling her colleagues, “We need to keep him in overnight,” which proved to be the right decision as I needed round-the-clock care to recover.  The nurses in the liver unit took exceptional care of me, closely monitoring my blood pressure and ensuring I was as comfortable as possible.

Despite the initial setback, I recovered from the surgery and was discharged. A few weeks later, I had another CT scan, and on the 8th of August, I was told that the operation had been successful. However, the scan also revealed a new, smaller lesion, about 7mm in size. The doctors weren’t overly concerned, but I was scheduled for ongoing monitoring, including a follow-up FibroScan in the NHS mobile unit.

The results from the FibroScan showed significant improvement. My liver reading had dropped from 11.9 KPA to 6.5 KPA, and my CAP score, which measures liver fat, had decreased from 323 to 266. I remember being told by the man performing the scan, “You would never have known you had a liver problem.” It was a relief to hear that.

Also, during this time, I learned that I was pre-diabetic, with a blood sugar score of 42. I was given nutritional advice and started intermittent fasting and eating a healthier diet. By April, after my initial scans, my blood sugar levels dropped, and my cholesterol levels improved as I embraced a healthier lifestyle.

Throughout this eight-month journey, I’ve been incredibly fortunate to receive such informative and supportive care. The South West Liver Unit has been exceptional, providing me with detailed information through phone calls and letters, while the British Liver Trust website has served as a fantastic resource. Additionally, I received excellent post-surgery care, which was crucial for my recovery.

I’m grateful for the incredible support from my healthcare team and the NHS liver programme, and I’m optimistic about the future. This experience has taught me that with the right care and lifestyle changes, we can all take steps to stay healthy.

Now, as I look ahead, I’m looking forward to enjoying my retirement to the fullest.

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